Preview Mode Links will not work in preview mode

A podcast about traveling the special needs road and discovering the hidden gems and unique finds of a place you didn't think you would be. We share how families are doing amazing things as a result of a diagnosis, and give you a glimpse into the realities of raising children with differing needs.

Mar 29, 2021

Bekah Bowman, mother, and author with a heart for ministry shares with us what it looks like to do the hard work of stepping into the church community to show them how to love kids with disabilities and to see the incredible gifts God has given them. Bekah continually points to joy in the middle of suffering and discusses how they are often roommates. 

We talk about:

  • How her world was rocked upon the discovery of her children’s rare disease
  • Raising two children with Batten disease, a rare degenerative disorder
  • Treatment for her son Ely while grieving the loss of Titus
  • The freedom in finding others that understand
  • Church life and disability life being at odds with one another
  • How people with disabilities belong in church and the body is not complete without them
  • Watching her boys teach people things about God that they would have never learned
  • Having a painful experience at church and seeking a new church home
  • Asking a new church for what she needed
  • How healing it is to attend church when the entire family is loved and cared for
  • The weakest parts of the church are the most valuable
  • Joni and Friends Ministry
  • Her book, “Can’t Steal My Joy: A Journey to a Different Kind of Brave”


Website - Bekah Bowman

Joni and Friends 

Bekah’s Book

Room For More Ministry - Coming soon!

Social Media

FB - @Team4TitusEly

IG - @bekahsbowman, @roomformoreministry

Related Episodes

Take Me to Church

Groomed for This with Eva Queen