Jan 31, 2021
In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools.
We talk about:
- Finding a cause of her daughter’s epilepsy
- Tuberous Sclerosis Complex (TSC)
- Traveling to Texas for brain surgery
- Learning to navigate the system
- Turning grief and energy toward rare disease advocacy
- The TS Alliance and her work with the Maryland chapter
- Brynleigh’s Act for Seizure Safe Schools
- Ways to introduce legislation
- Giving back and finding hope
- The joy found in paying it forward
Related episodes
Families That Advocate Together Stay Together with Laura Hatcher
Changing Spaces and Creating Hope with Christina Abernethy
Links
Maryland General Assembly - HB370
Maryland General Assembly - SB225
Find your Maryland Representatives
Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues
Low Intensity Support Services - LISS