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A podcast about traveling the special needs road and discovering the hidden gems and unique finds of a place you didn't think you would be. We share how families are doing amazing things as a result of a diagnosis, and give you a glimpse into the realities of raising children with differing needs.

Jan 31, 2021

In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools. 

We talk about:

  • Finding a cause of her daughter’s epilepsy
  • Tuberous Sclerosis Complex (TSC)
  • Traveling to Texas for brain surgery
  • Learning to navigate the system
  • Turning grief and energy toward rare disease advocacy
  • The TS Alliance and her work with the Maryland chapter
  • Brynleigh’s Act for Seizure Safe Schools
  • Ways to introduce legislation
  • Giving back and finding hope
  • The joy found in paying it forward

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